January 2007
11 posts
1 tag
Update: Stable
Jordan’s MRI went well. She did not like getting accessed and fought the nurses more than usual, but everything otherwise went as planned. The radiologist’s report is due tomorrow, but a preliminary scan by her doctor seems to show stable progress — no new growth (and no new reduction). She’s a little groggy from the anesthesia. Tomorrow she begins her new chemo cycle.
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Graduation
We have good news to share. At her weekly appointment for physical and occupational therapy, Jordan was told that she has graduated. She has achieved all of the goals her specialists set for her. She will soon be fitted for shorter, more flexible leg splints and will continue rehabilitating her legs on a self-directed program. She has reached a major milestone in her journey — and...
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A Great Wish Fulfilled
Jordan and I take a break from meeting with princesses to pose for a photo We are back in Pasadena—and we’re exhausted. No alarms this morning. The family fell in as each member awoke. We greeted the day with a big platter of pancakes and large pots of tea. We spent all day Saturday at Epcot. In the morning we breakfasted in Norway at a special Princess affair. Our family was...
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Disney/MGM
It was a slower paced day, but no less fun. We spent the majority of it at Disney/MGM. Jordan proved to be the venerable thrill-seeker we’ve come to know and love. She rode Tower of Terror with us, and even made a funny pose for the image capture system. The highlight of her day was seeing Ariel in the Little Mermaid stage show. She’s looking forward to tomorrow — when she has...
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Magic in the Kingdom
Jordan shares a story with Cinderella while getting her autograph Day 4 finally came — our trip to the Magic Kingdom. For the record, our “rest day” on day #3 was not very restful. Instead of lounging leisurely as we planned, we spent many hours out of the room shopping and being pampered. While Jordan and Jeanette were over at the Bibbidi Bobbidi Boutique getting Jordan’s...
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Wish Photos
We’ve been posting photos from our trip onto “Flickr”:http://www.flickr.com/photos/larryvincent/sets/72157594472406306/, if you’d like to follow along.
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A Princess Makeover
Jordan gets a complete “Princess Makeover” at the Bibbidi Bobbidi Boutique at Walt Disney World She has a princess personality, and today she got the makeup, hair and gown to match. Our friends at Disney arranged a complete princess makeover for her at the Bibbidi Bobbidi Boutique. She loved it. The photo above was captured as they wheeled her chair around so that she could see the...
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Wish Day #2: Quest for the Hard Ones
Jordan scales a 20 foot rock wall at Islands of Adventure She is a child who confounds any notion I have of strength. Just when I think I’ve seen her grandest statement of perseverance, she proves me wrong — and nothing makes me happier. She attacked her first day in Orlando with Herculean strength. Nothing could slow her down. It was a day chalk full of events. Her answer to each:...
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Wish Day #1
Jordan and Luc lounge in the stretch limo provided by Make-A-Wish to take us to the airport. She is wearing her “travel clothes” — a pink Juicy Couture track suit provided by her Auntie Lisa We’re off! Jordan could not be more excited. Our day began when a stretch limo arrived at our house at 7:15am. Jeanette and I were still scurrying about packing the bags while the kids...
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Wish Itinerary
Our “itinerary”:http://larryvincent.stikipad.com/wdw for next week is posted online. Many have asked what Jordan will be doing. You’ll see the schedule is packed — but its all things she likes to do with her family.
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Anticipating a Wish
Next week, our family is headed to Orlando, Florida. The “Make a Wish Foundation”:http://www.wish.org is sending Jordan to Walt Disney World, something she’s been bubbling about daily. Every day we revisit the countdown: “Dad, is it Monday, yet?” For the record, Walt Disney World was Jordan’s backup wish. Her first wish was to appear on an episode of “The...